For nineteen years, our family has searched for answers for Levi. Along the way, we have learned that the rare disease journey can be incredibly lonely—but it doesn’t have to be.

There are families all across Montana facing similar challenges, often quietly and without connection to others who understand.

If you are one of those families, we want you to know: you are not alone.

This space exists so we can find one another, support one another, and work together to make life better for rare disease families in our state.

Share your story. Connect with our community. Help us build a future where every rare disease family in Montana is seen, supported, and heard.